June is APS Awareness Month
June is APS Awareness Month. It’s also the month I was diagnosed with this disease seven years ago. Antiphospholipid syndrome, called APS for short, is an autoimmune disease in which your blood clots abnormally. It can increase a person's risk for blood clots, like the DVT and life-threatening PE that I experienced. An APS diagnosis is frightening and overwhelming, but it is also manageable. I’m still here, and so are a lot of other people living with this disease. Sometimes, it feels like a bit of a wild card, and I’m left wondering “what’s next?” What I’ve found is learning about the disease - from my doctors, from organizations working to raise awareness, and from my peers - has helped tremendously with the unknowns. So this month, I’ll use my platform here to share information about APS, both from my personal story and from people working hard to make a difference and to make a connection. If you have APS too, you’re not alone. If you’re scared, that’s understandable. It’s a confusing disease, and there is a lot of information to process. This is a good time to connect with the people and resources that can help. To begin with, here are ten things I wish I knew about APS from the start: http://bit.ly/2xRKGj9
#hopeforhealing #notalone #AwarenessMatters #APSAwareness #GoBurgundy
